Thursday, February 12, 2015

How about that?

Hi all,

So, today is a good day! Woke up headache free which is always a blessing! I'd say three times out of the week, I'm blessed enough to wake up without headaches.  My Chiari is what gives me headaches often.  It was one of my first symptoms back in 2011, before I knew everything that was going on.

I haven't talked about it much with you all because I was going to keep this a "strictly writing" blog but I've come to the realization that my illnesses play such a large part in my life, there is no way for me not to write about them. I should express my feelings about them because my illnesses make up a great part of my writing life--they are co-existant with my creative nature.

I can't really remember what I've written about in the past, about my illnesses or disabilities but I will run the risk for a little repetition. I was born with a rare heart and lung disease and within a month of diagnosis, the doctors told my parents to take me home and love me because I wouldn't make it to my second birthday. As I passed 5, 8, 10, my mom said she realized no man on Earth had the knowledge to say when our time is up. When I was 12, I ended up having scoliosis surgery bc my spine was curving into the one lung I use. I flatlined during that surgery 3 times and the doctors came out of that surgery with tears in their eyes telling my mom there was a force in that room that was protecting me bc they didn't understand how I survived. My pulse was 235 for 3 days!! Since then I've been diagnosed with MS, had a silent heart attack and almost died from a bad injection in a dentists office. And lastly 2 years ago, I was diagnosed with a non operable brain disorder (Chiari Malformation) and have become permanently disabled. I will be 47 this year and everyday I praise God!!!!! I know He is the reason I'm here and it's for His glory and His worship!! He is the one who decides our comings and goings and it's only in Him I put my trust!

I am grateful for every day--good or bad--and so very grateful for all the beloved people in my life. Family, friends, people I've met through writing, my Daily Audio Bible family, my LifeChurch family, my doctors and many nurses, my HHA and physical therapist; they all mean so much to me and do so much for me.  I could never repay them. All I can do is give love and possibly a little hope or inspiration.

So, my future posts will include more on Chiari and my present journey, as it does impact my writing and reading life.  Things are looking brighter on that front, however. I've been doing more writing lately (more than one paragraph a week, which is all I was up to a few months ago).  Pray for me!

Hope you all are well and I will return soon!  Love & Blessings!


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I'm a single, Christian gal who is doing the best she can to follow God's plan. I love the Lord, my family, friends and life. Don't ever be discouraged because God is faithful!